This girl named Otlanmetse Falaste, a black girl was 12 years old. This girl suffering from a rare disease that is aging prematurely or in medical terms called Hutchinson-Gilford syndrome. Ontlametse are strong although he knew that his life would not last long as another man, even he never said “I call myself a first lady (with disease Hutchinson-Gilford syndrome), because I was the first black child with this disease, do you know Adak black child with this disease than I? “The girl said.
Ontlametse was the only black girl with a diagnosis of Hutchinson Gilford syndrome, a rare and fatal disease, accelerating the aging process. In the entire history of mankind only two black children suffer from this disease and died in early years, one of the United States and one from the Netherlands.
According to experts, in the world there are only 200-250 cases of this disease. Average syndrome patients died at the age of 8 to 21 years, is usually complications arise and cause of death are diseases of hypertension, stroke, angina and heart failure